Frontiers in Genetics | ELSI in Science and Genetics

Brief Research Report

Published on 17 Dec 2019

Using the Findings of a National Survey to Inform the Work of England’s Genomics Education Programme

in ELSI in Science and Genetics

Siobhan Simpson
Anneke Seller
Michelle Bishop

Frontiers in Genetics

doi 10.3389/fgene.2019.01265

4,907 views
19 citations

Original Research

Published on 13 Dec 2019

Conversations Surrounding the Use of DNA Tests in the Family Reunification of Migrants Separated at the United States-Mexico Border in 2018

in ELSI in Science and Genetics

Jennifer K. Wagner
Diana Madden
Valedie Oray
Sara H. Katsanis

Frontiers in Genetics

doi 10.3389/fgene.2019.01232

12,961 views
10 citations

Original Research

Published on 21 Nov 2019

Informing Integration of Genomic Medicine Into Primary Care: An Assessment of Current Practice, Attitudes, and Desired Resources

in ELSI in Science and Genetics

June C. Carroll
Judith Allanson
Shawna Morrison
Fiona A. Miller
Brenda J. Wilson
Joanne A. Permaul
Deanna Telner

Frontiers in Genetics

doi 10.3389/fgene.2019.01189

7,802 views
60 citations

Brief Research Report

Published on 13 Nov 2019

Genomic Education at Scale: The Benefits of Massive Open Online Courses for the Healthcare Workforce

in ELSI in Science and Genetics

Michelle Bishop
Edward Miller
Amelia McPherson
Siobhan Simpson
Stuart Sutherland
Anneke Seller

Frontiers in Genetics

doi 10.3389/fgene.2019.01094

4,878 views
5 citations

Original Research

Published on 12 Nov 2019

Scoping the Scene: What Do Nurses, Midwives, and Allied Health Professionals Need and Want to Know About Genomics?

in ELSI in Science and Genetics

Mona Saleh
Romy Kerr
Kate Dunlop

Frontiers in Genetics

doi 10.3389/fgene.2019.01066

5,386 views
14 citations

Original Research

Published on 08 Nov 2019

Ensuring Best Practice in Genomic Education and Evaluation: A Program Logic Approach

in ELSI in Science and Genetics

Amy Nisselle
Melissa Martyn
Helen Jordan
Nadia Kaunein
Alison McEwen
Chirag Patel
Bronwyn Terrill
Michelle Bishop
Sylvia Metcalfe
Clara Gaff

Frontiers in Genetics

doi 10.3389/fgene.2019.01057

11,711 views
31 citations

Perspective

Published on 05 Nov 2019

DNA Data Marketplace: An Analysis of the Ethical Concerns Regarding the Participation of the Individuals

in ELSI in Science and Genetics

Eman Ahmed
Mahsa Shabani

Frontiers in Genetics

doi 10.3389/fgene.2019.01107

14,876 views
33 citations

Original Research

Published on 29 Oct 2019

Genomic Information for Clinicians in the Electronic Health Record: Lessons Learned From the Clinical Genome Resource Project and the Electronic Medical Records and Genomics Network

in ELSI in Science and Genetics

Marc S. Williams
Casey Overby Taylor
Nephi A. Walton
Scott R. Goehringer
Samuel Aronson
Robert R. Freimuth
Luke V. Rasmussen
Eric S. Hall
Cynthia A. Prows
Wendy K. Chung

Frontiers in Genetics

doi 10.3389/fgene.2019.01059

11,408 views
49 citations

Original Research

Published on 10 Oct 2019

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

in ELSI in Science and Genetics

Nchangwi Syntia Munung
Victoria Nembaware
Jantina de Vries
Daima Bukini
Furahini Tluway
Marsha Treadwell
Raphael Zozimus Sangeda
Gaston Mazandu
Mario Jonas
Vivian Paintsil

Frontiers in Genetics

doi 10.3389/fgene.2019.00943

6,457 views
17 citations

Systematic Review

Published on 10 Oct 2019

Data Management in Health-Related Research Involving Indigenous Communities in the United States and Canada: A Scoping Review

in ELSI in Science and Genetics

R. Brian Woodbury
Julie A. Beans
Vanessa Y. Hiratsuka
Wylie Burke

Frontiers in Genetics

doi 10.3389/fgene.2019.00942

6,710 views
12 citations

Opinion

Published on 08 Oct 2019

Strategies for Genomic Medicine Education in Low- and Middle-Income Countries

in ELSI in Science and Genetics

Nirmala D. Sirisena
Vajira H. W. Dissanayake

Frontiers in Genetics

doi 10.3389/fgene.2019.00944

3,326 views
13 citations

Mini Review

Published on 11 Sep 2019

Preparing Medical Specialists to Practice Genomic Medicine: Education an Essential Part of a Broader Strategy

in ELSI in Science and Genetics

Erin Crellin
Belinda McClaren
Amy Nisselle
Stephanie Best
Clara Gaff
Sylvia Metcalfe

Frontiers in Genetics

doi 10.3389/fgene.2019.00789

10,814 views
63 citations

Review

Published on 03 Sep 2019

Ethical Challenges of Germline Genetic Enhancement

in ELSI in Science and Genetics

Ignacio Macpherson
María Victoria Roqué
Ignacio Segarra

Frontiers in Genetics

doi 10.3389/fgene.2019.00767

53,559 views
10 citations

Mini Review

Published on 02 Aug 2019

Evidence-Based Genetic Education of Non-Genetic-Expert Physicians: Experiences Over Three Decades in Amsterdam

in ELSI in Science and Genetics

Martina C. Cornel

Frontiers in Genetics

doi 10.3389/fgene.2019.00712

3,510 views
11 citations

Policy and Practice Reviews

Published on 29 Jul 2019

Enabling Global Clinical Collaborations on Identifiable Patient Data: The Minerva Initiative

in ELSI in Science and Genetics

Christoffer Nellåker
Fowzan S. Alkuraya
Gareth Baynam
Raphael A. Bernier
Francois P.J. Bernier
Vanessa Boulanger
Michael Brudno
Han G. Brunner
Jill Clayton-Smith
Benjamin Cogné

Frontiers in Genetics

doi 10.3389/fgene.2019.00611

7,964 views
15 citations

Opinion

Published on 07 Jun 2019

Parental Selective Reproduction: Genome-Editing and Maternal Behavior as a Potential Concern

in ELSI in Science and Genetics

Andrea Lavazza

Frontiers in Genetics

doi 10.3389/fgene.2019.00532

59,943 views
6 citations