Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 17 May 2024

Genetic tests as the strongest motivator of cooperation between participants and biobanks–Findings from cross-sectional study

in ELSI in Science and Genetics

Anita Majchrowska
Jakub Pawlikowski
Jarosław Sak
Blanka Świerczyńska
Magdalena Suchodolska

Frontiers in Genetics

doi 10.3389/fgene.2024.1321690

998 views

Perspective

Published on 04 Apr 2024

Navigating equity in global access to genome therapy expanding access to potentially transformative therapies and benefiting those in need requires global policy changes

in ELSI in Science and Genetics

Tsung-Ling Lee
Tsutomu Sawai

Frontiers in Genetics

doi 10.3389/fgene.2024.1381172

2,869 views
2 citations

Original Research

Published on 03 Apr 2024

Introducing dynamic consent for improved trust and privacy in research involving human biological material and associated data in South Africa

in ELSI in Science and Genetics

Larisse Prinsen

Frontiers in Genetics

doi 10.3389/fgene.2024.1272924

2,202 views

Perspective

Published on 19 Feb 2024

Typological thinking in human genomics research contributes to the production and prominence of scientific racism

in ELSI in Science and Genetics

Kevin A. Bird
Jedidiah Carlson

Frontiers in Genetics

doi 10.3389/fgene.2024.1345631

3,882 views
8 citations

Perspective

Published on 31 Jan 2024

The use of race terms in epigenetics research: considerations moving forward

in ELSI in Science and Genetics

Dillon E. King
Pooja D. Lalwani
Gilberto Padilla Mercado
Emma L. Dolan
Johnna M. Frierson
Joel N. Meyer
Susan K. Murphy

Frontiers in Genetics

doi 10.3389/fgene.2024.1348855

4,860 views
3 citations

Original Research

Published on 26 Jan 2024

Access, autonomy, and affordability: ethical and human rights issues surrounding multigene panel testing for cancer in Japan and Switzerland

in ELSI in Science and Genetics

Kate Nakasato
Carlotta Manz
Kazuto Kato

Frontiers in Genetics

doi 10.3389/fgene.2024.1343720

2,684 views

Perspective

Published on 08 Jan 2024

ACCESS: an empirically-based framework developed by the International Nursing CASCADE Consortium to address genomic disparities through the nursing workforce

in ELSI in Science and Genetics

Maria C. Katapodi
Carla Pedrazzani
Sivia Barnoy
Efrat Dagan
Muriel Fluri
Tarsha Jones
Sue Kim
Meghan L. Underhill-Blazey
Melissa K. Uveges
Andrew A. Dwyer

Frontiers in Genetics

doi 10.3389/fgene.2023.1337366

2,665 views
4 citations

Original Research

Published on 03 Jan 2024

Genetics in the X-Men film franchise: mutants as allegories of difference

in ELSI in Science and Genetics

Sonora R. Grimsted
Katerina G. Krizner
Cynthia D. Porter
Jay Clayton

Frontiers in Genetics

doi 10.3389/fgene.2023.1331905

10,743 views
1 citation

Perspective

Published on 11 Dec 2023

Science fiction and ELSI: three thoughts

in ELSI in Science and Genetics

Henry T. Greely

Frontiers in Genetics

doi 10.3389/fgene.2023.1270590

1,719 views
1 citation

Original Research

Published on 06 Dec 2023

A data management plan for the NESHIE observational study

in ELSI in Science and Genetics

Adéle Strydom
Jeanne Van Rensburg
Michael S. Pepper

Frontiers in Genetics

doi 10.3389/fgene.2023.1273975

2,227 views

Policy and Practice Reviews

Published on 28 Nov 2023

Bridging the gap: returning genetic results to indigenous communities in Latin America

in ELSI in Science and Genetics

Epifanía Arango-Isaza
María José Aninao
Roberto Campbell
Felipe I. Martínez
Kentaro K. Shimizu
Chiara Barbieri

Frontiers in Genetics

doi 10.3389/fgene.2023.1304974

6,842 views
2 citations

Original Research

Published on 28 Nov 2023

A conceptual analysis of public opinion regarding genome research in Japan

in ELSI in Science and Genetics

Shibly Shahrier
Hristina Gaydarska
Kayo Takashima
Go Yoshizawa
Jusaku Minari

Frontiers in Genetics

doi 10.3389/fgene.2023.1170794

2,105 views
1 citation

Original Research

Published on 07 Nov 2023

The human genome as the common heritage of humanity

in ELSI in Science and Genetics

Faith Kabata
Donrich Thaldar

Frontiers in Genetics

doi 10.3389/fgene.2023.1282515

3,774 views
4 citations

Hypothesis and Theory

Published on 19 Oct 2023

A leap of faith: building the trust in human biobanks

in ELSI in Science and Genetics

Yi Zhang
Bohua Liao
Ruipeng Lei

Frontiers in Genetics

doi 10.3389/fgene.2023.1261623

3,075 views
4 citations

Original Research

Published on 02 Oct 2023

Open science and human genetic data: recommendations on South Africa’s Draft National Open Science Policy

in ELSI in Science and Genetics

Donrich Thaldar
Amy Gooden
Michaela Steytler

Frontiers in Genetics

doi 10.3389/fgene.2023.1248747

3,850 views
1 citation

Editorial

Published on 27 Sep 2023

Editorial: Toward a better understanding and application of benefit sharing in genomic and global health research

in ELSI in Science and Genetics

Aminu Yakubu
Ann M. Mc Cartney
Dominique Sprumont

Frontiers in Genetics

doi 10.3389/fgene.2023.1291181

2,127 views