Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 26 Jan 2024

Access, autonomy, and affordability: ethical and human rights issues surrounding multigene panel testing for cancer in Japan and Switzerland

in ELSI in Science and Genetics

Kate Nakasato
Carlotta Manz
Kazuto Kato

Frontiers in Genetics

doi 10.3389/fgene.2024.1343720

3,787 views
1 citation

Perspective

Published on 08 Jan 2024

ACCESS: an empirically-based framework developed by the International Nursing CASCADE Consortium to address genomic disparities through the nursing workforce

in ELSI in Science and Genetics

Maria C. Katapodi
Carla Pedrazzani
Sivia Barnoy
Efrat Dagan
Muriel Fluri
Tarsha Jones
Sue Kim
Meghan L. Underhill-Blazey
Melissa K. Uveges
Andrew A. Dwyer

Frontiers in Genetics

doi 10.3389/fgene.2023.1337366

4,148 views
10 citations

Original Research

Published on 03 Jan 2024

Genetics in the X-Men film franchise: mutants as allegories of difference

in ELSI in Science and Genetics

Sonora R. Grimsted
Katerina G. Krizner
Cynthia D. Porter
Jay Clayton

Frontiers in Genetics

doi 10.3389/fgene.2023.1331905

18,831 views
6 citations

Perspective

Published on 11 Dec 2023

Science fiction and ELSI: three thoughts

in ELSI in Science and Genetics

Henry T. Greely

Frontiers in Genetics

doi 10.3389/fgene.2023.1270590

2,813 views
1 citation

Original Research

Published on 06 Dec 2023

A data management plan for the NESHIE observational study

in ELSI in Science and Genetics

Adéle Strydom
Jeanne Van Rensburg
Michael S. Pepper

Frontiers in Genetics

doi 10.3389/fgene.2023.1273975

3,761 views
2 citations

Policy and Practice Reviews

Published on 28 Nov 2023

Bridging the gap: returning genetic results to indigenous communities in Latin America

in ELSI in Science and Genetics

Epifanía Arango-Isaza
María José Aninao
Roberto Campbell
Felipe I. Martínez
Kentaro K. Shimizu
Chiara Barbieri

Frontiers in Genetics

doi 10.3389/fgene.2023.1304974

9,742 views
7 citations

Original Research

Published on 28 Nov 2023

A conceptual analysis of public opinion regarding genome research in Japan

in ELSI in Science and Genetics

Shibly Shahrier
Hristina Gaydarska
Kayo Takashima
Go Yoshizawa
Jusaku Minari

Frontiers in Genetics

doi 10.3389/fgene.2023.1170794

3,281 views
1 citation

Original Research

Published on 07 Nov 2023

The human genome as the common heritage of humanity

in ELSI in Science and Genetics

Faith Kabata
Donrich Thaldar

Frontiers in Genetics

doi 10.3389/fgene.2023.1282515

6,170 views
10 citations

Hypothesis and Theory

Published on 19 Oct 2023

A leap of faith: building the trust in human biobanks

in ELSI in Science and Genetics

Yi Zhang
Bohua Liao
Ruipeng Lei

Frontiers in Genetics

doi 10.3389/fgene.2023.1261623

3,871 views
5 citations

Original Research

Published on 02 Oct 2023

Open science and human genetic data: recommendations on South Africa’s Draft National Open Science Policy

in ELSI in Science and Genetics

Donrich Thaldar
Amy Gooden
Michaela Steytler

Frontiers in Genetics

doi 10.3389/fgene.2023.1248747

5,005 views
2 citations

Editorial

Published on 27 Sep 2023

Editorial: Toward a better understanding and application of benefit sharing in genomic and global health research

in ELSI in Science and Genetics

Aminu Yakubu
Ann M. Mc Cartney
Dominique Sprumont

Frontiers in Genetics

doi 10.3389/fgene.2023.1291181

2,634 views
1 citation

Review

Published on 19 Sep 2023

Personalizing medicine in Africa: current state, progress and challenges

in ELSI in Science and Genetics

Paul Owolabi
Yagoub Adam
Ezekiel Adebiyi

Frontiers in Genetics

doi 10.3389/fgene.2023.1233338

9,417 views
19 citations

Editorial

Published on 07 Sep 2023

Editorial: Data-intensive medicine and healthcare: ethical and social implications in the era of artificial intelligence and automated decision-making

in ELSI in Science and Genetics

Aviad Raz
Jusaku Minari
Silke Schicktanz
Tamar Sharon
Gabriele Werner-Felmayer

Frontiers in Genetics

doi 10.3389/fgene.2023.1280344

2,852 views
2 citations

Editorial

Published on 22 Aug 2023

Editorial: The ethics and challenges of studying the genetics of marginalized populations

in ELSI in Science and Genetics

Tina Lasisi
Katrina G. Claw
Keolu Fox
Arslan A. Zaidi

Frontiers in Genetics

doi 10.3389/fgene.2023.1260457

2,948 views

Original Research

Published on 17 Aug 2023

Human genome editing in clinical applications: Japanese lay and expert attitudes

in ELSI in Science and Genetics

Tsutomu Sawai
Taichi Hatta
Kyoko Akatsuka
Misao Fujita

Frontiers in Genetics

doi 10.3389/fgene.2023.1205092

5,453 views
5 citations

Mini Review

Published on 28 Jul 2023

Legal approaches to risk of harm in genetic counseling: perspectives from Quebec and Qatar

in ELSI in Science and Genetics

Dimitri Patrinos
Mohammed Ghaly
Mashael Al-Shafai
Ma’n H. Zawati

Frontiers in Genetics

doi 10.3389/fgene.2023.1190421

4,018 views
5 citations

Original Research

Published on 30 Jun 2023

Regulating human genomic research in Africa: why a human rights approach is a more promising conceptual framework than genomic sovereignty

in ELSI in Science and Genetics

Faith Kabata
Donrich Thaldar

Frontiers in Genetics

doi 10.3389/fgene.2023.1208606

5,044 views
5 citations

Original Research

Published on 26 Jun 2023

Australian parental perceptions of genomic newborn screening for non-communicable diseases

in ELSI in Science and Genetics

Sarah Casauria
Sharon Lewis
Fiona Lynch
Richard Saffery

Frontiers in Genetics

doi 10.3389/fgene.2023.1209762

4,003 views
2 citations

Original Research

Published on 26 Jun 2023

AI-assisted ethics? considerations of AI simulation for the ethical assessment and design of assistive technologies

in ELSI in Science and Genetics

Silke Schicktanz
Johannes Welsch
Mark Schweda
Andreas Hein
Jochem W. Rieger
Thomas Kirste

Frontiers in Genetics

doi 10.3389/fgene.2023.1039839

10,444 views
21 citations

Original Research

Published on 22 Jun 2023

Genome editing of human embryos for research purposes: Japanese lay and expert attitudes

in ELSI in Science and Genetics

Kyoko Akatsuka
Taichi Hatta
Tsutomu Sawai
Misao Fujita

Frontiers in Genetics

doi 10.3389/fgene.2023.1205067

12,967 views
9 citations

Original Research

Published on 16 Jun 2023

Competencies of the UK nursing and midwifery workforce to mainstream genomics in the National Health Service: the ongoing gap between perceived importance and confidence in genomics

in ELSI in Science and Genetics

Catherine Carpenter-Clawson
Melanie Watson
Alison Pope
Kathleen Lynch
Tracie Miles
Dany Bell
Maureen Talbot
Aniko Varadi

Frontiers in Genetics

doi 10.3389/fgene.2023.1125599

10,828 views
18 citations

Perspective

Published on 14 Jun 2023

Utilization of genetic information for medicines development and equitable benefit sharing

in ELSI in Science and Genetics

Kotone Matsuyama
Chieko Kurihara
Francis P. Crawley
Sandor Kerpel-Fronius

Frontiers in Genetics

doi 10.3389/fgene.2023.1085864

4,254 views
7 citations

Original Research

Published on 08 Jun 2023

Core issues, case studies, and the need for expanded Legacy African American genomics

in ELSI in Science and Genetics

Fatimah Jackson
Carter Clinton
Jennifer Caldwell

Frontiers in Genetics

doi 10.3389/fgene.2023.843209

8,514 views
2 citations

Opinion

Published on 30 May 2023

AI-driven risk scores: should social scoring and polygenic scores based on ethnicity be equally prohibited?

in ELSI in Science and Genetics

Aviad Raz
Jusaku Minari

Frontiers in Genetics

doi 10.3389/fgene.2023.1169580

6,719 views
8 citations

210 articles

articles

Access, autonomy, and affordability: ethical and human rights issues surrounding multigene panel testing for cancer in Japan and Switzerland

ACCESS: an empirically-based framework developed by the International Nursing CASCADE Consortium to address genomic disparities through the nursing workforce

Genetics in the X-Men film franchise: mutants as allegories of difference

Science fiction and ELSI: three thoughts

A data management plan for the NESHIE observational study

Bridging the gap: returning genetic results to indigenous communities in Latin America

A conceptual analysis of public opinion regarding genome research in Japan

The human genome as the common heritage of humanity

A leap of faith: building the trust in human biobanks

Open science and human genetic data: recommendations on South Africa’s Draft National Open Science Policy

Editorial: Toward a better understanding and application of benefit sharing in genomic and global health research

Personalizing medicine in Africa: current state, progress and challenges

Editorial: Data-intensive medicine and healthcare: ethical and social implications in the era of artificial intelligence and automated decision-making

Editorial: The ethics and challenges of studying the genetics of marginalized populations

Human genome editing in clinical applications: Japanese lay and expert attitudes

Legal approaches to risk of harm in genetic counseling: perspectives from Quebec and Qatar

Regulating human genomic research in Africa: why a human rights approach is a more promising conceptual framework than genomic sovereignty

Australian parental perceptions of genomic newborn screening for non-communicable diseases

AI-assisted ethics? considerations of AI simulation for the ethical assessment and design of assistive technologies

Genome editing of human embryos for research purposes: Japanese lay and expert attitudes

Competencies of the UK nursing and midwifery workforce to mainstream genomics in the National Health Service: the ongoing gap between perceived importance and confidence in genomics

Utilization of genetic information for medicines development and equitable benefit sharing

Core issues, case studies, and the need for expanded Legacy African American genomics

AI-driven risk scores: should social scoring and polygenic scores based on ethnicity be equally prohibited?