Frontiers in Genetics | ELSI in Science and Genetics

Original Research

Published on 17 Nov 2022

Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members

in ELSI in Science and Genetics

Erisa Sabakaki Mwaka
Godfrey Bagenda
Deborah Ekusai Sebatta
Sylvia Nabukenya
Ian Munabi

Frontiers in Genetics

doi 10.3389/fgene.2022.1037401

4,143 views
4 citations

Perspective

Published on 11 Nov 2022

Extending the CARE Principles from tribal research policies to benefit sharing in genomic research

in ELSI in Science and Genetics

Stephanie Russo Carroll
Rebecca Plevel
Lydia L. Jennings
Ibrahim Garba
Rogena Sterling
Felina M. Cordova-Marks
Vanessa Hiratsuka
Maui Hudson
Nanibaa’ A. Garrison

Frontiers in Genetics

doi 10.3389/fgene.2022.1052620

6,218 views
25 citations

Original Research

Published on 09 Nov 2022

The multidimensional legal nature of personal genomic sequence data: A South African perspective

in ELSI in Science and Genetics

Donrich W. Thaldar
Beverley A. Townsend
Dusty-Lee Donnelly
Marietjie Botes
Amy Gooden
Joanne van Harmelen
Bonginkosi Shozi

Frontiers in Genetics

doi 10.3389/fgene.2022.997595

5,283 views
14 citations

Policy and Practice Reviews

Published on 24 Oct 2022

From the patient to the population: Use of genomics for population screening

in ELSI in Science and Genetics

Chloe Mighton
Salma Shickh
Vernie Aguda
Suvetha Krishnapillai
Ella Adi-Wauran
Yvonne Bombard

Frontiers in Genetics

doi 10.3389/fgene.2022.893832

5,308 views
13 citations

Editorial

Published on 21 Oct 2022

Editorial: Ethical and regulatory challenges in genetic and genomic research involving stored biological specimens

in ELSI in Science and Genetics

Nut Koonrungsesomboon
Kenji Hirayama

Frontiers in Genetics

doi 10.3389/fgene.2022.1062188

1,366 views
2 citations

Policy and Practice Reviews

Published on 13 Oct 2022

Ethical challenges in genetic research among Philippine Indigenous Peoples: Insights from fieldwork in Zamboanga and the Sulu Archipelago

in ELSI in Science and Genetics

Jae Joseph Russell B. Rodriguez
John Meldwin D. Cuales
Michael James B. Herrera
Louward Allen M. Zubiri
Richard N. Muallil
Altan I. Ishmael
Edlyn B. Jimenez
Mark Stoneking
Maria Corazon A. De Ungria

Frontiers in Genetics

doi 10.3389/fgene.2022.901515

13,126 views
2 citations

Hypothesis and Theory

Published on 12 Oct 2022

Rethinking benefit sharing in collaborative human genetic research from an Afrocommunitarian perspective

in ELSI in Science and Genetics

Cornelius Ewuoso
Allan Sudoi
Dorcas Kamuya

Frontiers in Genetics

doi 10.3389/fgene.2022.1014120

2,749 views
6 citations

Policy and Practice Reviews

Published on 04 Oct 2022

The future regulation of artificial intelligence systems in healthcare services and medical research in the European Union

in ELSI in Science and Genetics

Janos Meszaros
Jusaku Minari
Isabelle Huys

Frontiers in Genetics

doi 10.3389/fgene.2022.927721

14,631 views
50 citations

Editorial

Published on 03 Oct 2022

Editorial: Women in science: Genetics

in ELSI in Science and Genetics

Jaira Ferreira de Vasconcellos
Malak Abedalthagafi
Silvia Calo
Rana Dajani
Zodwa Dlamini
Bertha Hidalgo
Carine Le Goff
Aparna Vasanthakumar

Frontiers in Genetics

doi 10.3389/fgene.2022.1038317

2,285 views
1 citation

Perspective

Published on 21 Sep 2022

Benefit sharing: Why inclusive provenance metadata matter

in ELSI in Science and Genetics

Jacob Golan
KatieLee Riddle
Maui Hudson
Jane Anderson
Natalie Kusabs
Tim Coltman

Frontiers in Genetics

doi 10.3389/fgene.2022.1014044

4,922 views
16 citations

Original Research

Published on 19 Sep 2022

Explainability in medicine in an era of AI-based clinical decision support systems

in ELSI in Science and Genetics

Robin L. Pierce
Wim Van Biesen
Daan Van Cauwenberge
Johan Decruyenaere
Sigrid Sterckx

Frontiers in Genetics

doi 10.3389/fgene.2022.903600

5,542 views
35 citations

Original Research

Published on 15 Sep 2022

Social differentiation of the perception and human tissues donation for research purposes

in ELSI in Science and Genetics

Anita Majchrowska
Michał Wiechetek
Jan Domaradzki
Jakub Pawlikowski

Frontiers in Genetics

doi 10.3389/fgene.2022.989252

2,297 views
11 citations

Original Research

Published on 22 Aug 2022

Beyond race: Recruitment of diverse participants in clinical genomics research for rare disease

in ELSI in Science and Genetics

Jennifer L. Young
Meghan C. Halley
Beatriz Anguiano
Liliana Fernandez
Jonathan A. Bernstein
Matthew T. Wheeler
Holly K. Tabor
Undiagnosed Diseases Network Consortium

Frontiers in Genetics

doi 10.3389/fgene.2022.949422

3,903 views
14 citations

Original Research

Published on 22 Aug 2022

Transparent human – (non-) transparent technology? The Janus-faced call for transparency in AI-based health care technologies

in ELSI in Science and Genetics

Tabea Ott
Peter Dabrock

Frontiers in Genetics

doi 10.3389/fgene.2022.902960

4,552 views
3 citations

Perspective

Published on 19 Aug 2022

Study the forest, not only the trees: Environmental exposures, not genomes, generate most health disparities

in ELSI in Science and Genetics

Taylor V. Thompson
Katherine C. Crocker

Frontiers in Genetics

doi 10.3389/fgene.2022.817899

1,738 views
1 citation

Original Research

Published on 15 Aug 2022

“Democratizing” artificial intelligence in medicine and healthcare: Mapping the uses of an elusive term

in ELSI in Science and Genetics

Giovanni Rubeis
Keerthi Dubbala
Ingrid Metzler

Frontiers in Genetics

doi 10.3389/fgene.2022.902542

6,742 views
25 citations